IASLC Newsletter - August 2017
Social Media and Me
Mavis Nye - Mesothelioma Patient, Advocate, Blogger and Meso-warrior
I have always blogged about my mesothelioma journey - from initial diagnosis until today, which amounts to eight-and-a-half years. My blog helps me to reach a lot of people and tell them what it is like to live everyday with a terminal illness. Facebook also helps me to link up with others in the same boat and provided a space to share our experiences. At one point, I even created several Facebook groups with another meso-warrior.
When she passed away, I continued to work on these communities. I built them up into Facebook support groups, a dedicated webpage and a foundation. I also have a Twitter account (@grandmamavis) and a LinkedIn page. These platforms allow me to share information on my disease, treatments and trials. This collective work has resulted in a position on the steering committee for a clinical trial, an important opportunity that allows me to help guide trials from a patient perspective.
To date I haven't found any disadvantages to using social media. It is a medium that has allowed me to reach out to thousands of people from around the world to affect change. I am very proud to share my story and my work through these social media channels, as well as on TV., radio and YouTube. I thought when I retired I might be bored occasionally; how wrong I was!
Help the mesothelioma community raise awareness on social media during Mesothelioma Awareness Day on Sept. 26, 2017. Remember to use the hashtags: #MesoAwarenessDay and #ENDMeso.
August 2017: The IASLC and the Journal of Thoracic Oncology (JTO) are pleased to present the Editor's Choice each month to highlight certain articles of interest. The articles below from the August 2017 issue of the JTO are free for three months. Please share with your colleagues around the globe!
Alex A. Adjei, MD, PhD
MET Exon 14 Skipping Mutations in Lung Adenocarcinoma: Clinicopathologic Implications and Prognostic Values
By Lee et al. This insightful, accompanying editorial by Dr. Sai-Hong Ou and colleagues puts these findings into a broader context.
By Cressman et al. Dr. Patrick Nana-Sinkam and colleagues put these findings into context in an accompanying editorial.
The Influence of Body Mass Index on Overall Survival Following Surgical Resection of Non-Small Cell Lung Cancer
By Sepesi et al. The “obesity paradox” is explored in this paper, which is accompanied by an excellent editorial by Dr. Emily Stone and her colleague.
The following article was selected from the JTO by the IASLC Communications Committee to be promoted to the media and the public with a press release that was released at the time of online publication (published ahead of print).
To read more IASLC press releases, please visit the IASLC Research Articles. These press releases are also announced via social media, so please follow the IASLC on Twitter, LinkedIn and Facebook to stay up to date on the latest scientific topics. Also, please follow the JTO on Twitter and Facebook.
Lung Cancer Clinical Trial Eligibility Criteria and Requirements Have Increased in Number and Complexity
Eligibility criteria continue to increase in number and complexity for lung cancer clinical trials.
August 10, 2017 | More
The IASLC Committee Self-Nomination
The IASLC seeks a highly competent and active pool of members to serve as volunteers on its organizational committees. IASLC committees contribute significantly to the effective operation and development of IASLC programs. Committee membership typically represents a broad geographical spectrum and a multidisciplinary perspective. Committee members are recommended by the President of the IASLC and are approved by the Board of Directors. View additional important details on the self-nomination process.
Active, qualified members may nominate themselves for committees of interest by filling out this form.
Member Discount for the IASLC 18th World Conference on Lung Cancer – Yokohama, Japan
A primary benefit of an IASLC membership is discounted registration ($USD 250) for the IASLC 18th World Conference on Lung Cancer (WCLC). To access your member discount, be sure to have your Member ID and email address. Once you have both details, the rest of your information will pre-populate, allowing you to register quickly.
To find your Member ID in your IASLC account:
1. Login. Enter your Username and Password. If you have forgotten your password, you can reset it with the “Forgot Password” button on your screen. Once you have signed into your account, click “My Details” on the right side of your screen. You will then see your Member ID appear towards the top of your screen.
2. You will also find your Member ID in any past renewal email notices, invoices or on your Member ID card from the IASLC. However, please also feel free to email email@example.com with any questions or concerns and we will be happy to provide your Member ID to you right away!
Lung Cancer Awareness Month 2017 Campaign - August Update
The LCAM website is a year-round resource to read stories of those affected by lung cancer. The lung cancer community can participate by submitting personal stories to be included in the site. You can also sign up on the site to receive email updates about its continuing development and follow the campaign on Facebook and Twitter feeds specifically devoted to the campaign.
If your organization would like to be a LCAM 2017 partner, please contact Kristin.Schultz@iaslc.org. Thank you to our partners who have recently joined the campaign, including the Israel Lung Cancer Foundation, Pembe Hanim, the International Thoracic Oncology Nursing Forum and Citizens for Radioactive Radon Reduction.
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November 17 2018San Francisco, California
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