There is another type of cancer advocacy called “research advocacy.” Research advocates are volunteers with a personal connection to cancer who are passionate about helping research translate into meaningful outcomes for patients and their families. Lung cancer research advocates provide the perspective of the lung cancer patient community to help researchers focus on the questions most important to patients and create studies that will extend lives and improve the quality of life for people who have lung cancer.
The IASLC is a scientific membership organization that recognizes the importance of patient research advocates within the research ecosystem. The IASLC Supportive Training for Advocates on Research & Science (STARS) program aims to increase the number of patient research advocates (PRAs) equipped to provide accurate scientific translation in their online or real-life groups for patients with lung cancer and their caregivers, and to provide the patient perspective for lung cancer research and policy. STARS is not intended to help patients or caregivers learn how to become patient advocates or share their personal lung cancer story.