From Grief to Global Change: How the STARS Program Empowers Advocates to Drive Lung Cancer Research

… from a grieving family member into a passionate patient research advocate. Despite not having a background in healthcare or cancer research, Caleb was driven to make a difference. Together with … generating critical data that could shape future cancer research in Nigeria. Today, Caleb is part of the IASLC …

Words Matter: Coping with Misinformation in Healthcare

… In the complex and fast-moving world of cancer research, even institutions can have trouble keeping … I drew this to the attention of both the organization’s research department and the communications department. I … some time and experimentation to reach that consensus. As researchers uncover more information through trials and case …

Patient Advocacy in 2023: A Look Back at Advocacy Efforts, Patient Concerns

… since 2018, I have the growth and dynamism of patient research advocacy. This growth, while encouraging, comes with a bittersweet reality—prominent patient research advocates are frequently lost along the journey, as … in  Passing of The Baton—On the Death of Patient Research Advocates . Their absence reminds me how fragile and …

WCLC Closing Plenary Explored Overcoming Barriers to Patient Advocacy Worldwide

… Leigh Countering misconceptions about fundraising for research and addressing resource constraints were some … that Yvonne Diaz, co-founder and chair of Oncogene Cancer Research UK, encountered during the organization’s formation. … establishing a tissue bank in the UK. The bank supports research aimed at developing treatments for resistance to …

EGFR Resisters Announce 5th Annual Research Summit

… Advocacy group says its annual research events are key to its mission: Making EGFR-mutated … chronic disease. … EGFR Resisters Announce 5th Annual Research Summit … Erin Jungmeyer …

A Surprising Career Advances Cancer Research: Margaret Foti, MD, PhD (hc)

… A Surprising Career Advances Cancer Research: Margaret Foti, MD, PhD (hc) …

Translating Early Research to Adapt CAR T-Cell Therapy to Solid Tumors

… Translating Early Research to Adapt CAR T-Cell Therapy to Solid Tumors …

Empowering Change and Amplifying Impact Through Research Advocacy Activities

… … Empowering Change and Amplifying Impact Through Research Advocacy Activities … Erin Jungmeyer …

Program Trains Patient Research Advocates to be STARS

… Program Trains Patient Research Advocates to be STARS … Lauren Evoy Davis …

Committee Update: Advocates Offer Unique Support to Members, Help Investigators Understand Patients

… Feldman said ensuring the patient voice is present in research helps to improve the work being done to reduce the …

Patient Advocate Ivy B. Elkins Leaves Lasting Legacy

… her warm and energetic approach to furthering lung cancer research efforts. … Patient Advocate Ivy B. Elkins Leaves …

Words Matter: Coping with Misinformation in Healthcare

… Angus Pratt explores the issues patients face while researching their disease when inaccurate and out-of-date …