From Grief to Global Change: How the STARS Program Empowers Advocates to Drive Lung Cancer Research

Words Matter: Coping with Misinformation in Healthcare

… In the complex and fast-moving world of cancer research, even institutions can have trouble keeping … I drew this to the attention of both the organization’s research department and the communications department. I … some time and experimentation to reach that consensus. As researchers uncover more information through trials and case …

Patient Advocacy in 2023: A Look Back at Advocacy Efforts, Patient Concerns

… since 2018, I have the growth and dynamism of patient research advocacy. This growth, while encouraging, comes with a bittersweet reality—prominent patient research advocates are frequently lost along the journey, as … in  Passing of The Baton—On the Death of Patient Research Advocates . Their absence reminds me how fragile and …

WCLC Closing Plenary Explored Overcoming Barriers to Patient Advocacy Worldwide

… Leigh Countering misconceptions about fundraising for research and addressing resource constraints were some … that Yvonne Diaz, co-founder and chair of Oncogene Cancer Research UK, encountered during the organization’s formation. … establishing a tissue bank in the UK. The bank supports research aimed at developing treatments for resistance to …

EGFR Resisters Announce 5th Annual Research Summit

More Than a Partnership: How Oncogene-Driven Patient Groups Are Mobilizing the Global Community to Drive Research

The Lung Cancer Research Foundation and Free to Breathe Merge to Fight Lung Cancer

… The Lung Cancer Research Foundation and Free to Breathe Merge to Fight Lung …

From Patient to Patient Research Advocate: The STARS Journey

… From Patient to Patient Research Advocate: The STARS Journey …

Disrupting the Paradigm: Partnering With Oncogene-Focused Patient Groups to Propel Research

Empowering Change and Amplifying Impact Through Research Advocacy Activities

Program Trains Patient Research Advocates to be STARS

Patient Perspective: Exercise Prescriptions Needed for Lung Cancer Patients

… of a postdiagnosis exercise analysis support this. Researchers found the median overall survival difference was …