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ILCN article

From Grief to Global Change: How the STARS Program Empowers Advocates to Drive Lung Cancer Research

… from a grieving family member into a passionate patient research advocate. Despite not having a background in healthcare or cancer research, Caleb was driven to make a difference. Together with … generating critical data that could shape future cancer research in Nigeria. Today, Caleb is part of the IASLC …

ILCN article

Words Matter: Coping with Misinformation in Healthcare

… In the complex and fast-moving world of cancer research, even institutions can have trouble keeping … I drew this to the attention of both the organization’s research department and the communications department. I … some time and experimentation to reach that consensus. As researchers uncover more information through trials and case …

ILCN article

Patient Advocacy in 2023: A Look Back at Advocacy Efforts, Patient Concerns

… since 2018, I have the growth and dynamism of patient research advocacy. This growth, while encouraging, comes with a bittersweet reality—prominent patient research advocates are frequently lost along the journey, as … in Passing of The Baton—On the Death of Patient Research Advocates . Their absence reminds me how fragile and …

ILCN article

WCLC Closing Plenary Explored Overcoming Barriers to Patient Advocacy Worldwide

… Leigh Countering misconceptions about fundraising for research and addressing resource constraints were some … that Yvonne Diaz, co-founder and chair of Oncogene Cancer Research UK, encountered during the organization’s formation. … establishing a tissue bank in the UK. The bank supports research aimed at developing treatments for resistance to …

ILCN article

EGFR Resisters Announce 5th Annual Research Summit

… Advocacy group says its annual research events are key to its mission: Making EGFR-mutated … chronic disease. … EGFR Resisters Announce 5th Annual Research Summit … Erin Jungmeyer …