Patient Advocacy

Amplifying the patient voice to improve the speed and quality of research. The IASLC is proud to support and partner with various patient advocacy groups, patient research advocates, and patient advocates from around the globe.
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The past decade has shown tremendous advances in the care of patients with lung cancer. With improved survival comes the opportunity for patients to become survivors who advocate for research by attending conferences, forming relationships with physicians and care providers, and lending their voices through committee involvement and speaking opportunities. The IASLC offers several opportunities to help transform patients into patient research advocates.

 

Share Your Experience | Share Your Story! 

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GO2 Foundation for Lung Cancer, through its Lung Cancer Registry, has a new survey that focuses on the experiences and mental health of caregivers.

We need to hear from you! Help researchers gain better understanding of co-survivorship experiences. Join the Lung Cancer Registry today and tell us about your experience. The survey is composed of approximately 20 questions and is available in English, Spanish, German, French, and simplified Chinese. It is quick and easy to sign-up. Learn more here. 

The information collected will directly guide caregiver support programs and resource development. The more you share, the more we can provide support and gain an understanding of the caregiver experience. 
 

Patient Advocacy Spotlights

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A Journey Unlike Any Other: Jill Feldman
"My story started long before I was diagnosed. When I was 13, I had lost two grandparents to lung cancer within weeks of diagnosis and within weeks of each other. Six months after losing his own father, my dad was diagnosed with lung cancer, and he died 3 months later at the age of 41."

Advocates at Work

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Dr. D. Ross Camidge on Teliso-V Monotherpay in patients with previously treated C-Met+ Advanced NSCLC
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Jill Feldman Discusses the IASLC Language Guide
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Ivy Elkins Discusses Real-World Treatment for Patients with EGFR-Positive Lung Cancer
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Ivy Elkins on Pembrolizumab in Combination with Platinum-Based Chemo in Recurrent EGFR/ALK+ NSCLC
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Jill Feldman on Improving Tobacco Cessation Among Individuals Undergoing Lung Cancer Screening
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Amy C. Moore, PhD Discusses the Epical Trial
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Angus Pratt Discusses Medical Assistance in Dying (MAID) in Lung Cancer
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Dr. Upal Basu Roy Discusses Data from the NADIM Trial and from the National Cancer Database regarding the addition of surgery to Chemoradiation of the Chemotherapy

Advocacy Opportunities for IASLC Members

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Cancer Care Team Award

Nominate your care team for outstanding provision of care.

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STARS

Learn how to read journal articles, understand clinical trial design, and communicate effectively with scientists and physicians regarding novel research. Apply to STARS today.

Patient Advocate Committee

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Apply for a position on the IASLC Patient Advocate Committee.

Pair Up With an IASLC Patient Advocate Partner

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Contact us at advocacy@iaslc.org to be paired with an advocacy group based on your patient story.

Become a Member

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Contact us about the complimentary membership for patients and advocates.

We proudly partner with 13+ advocacy organizations to advance the care of patients with lung cancer in patient-driven ways that focus on quality of care and quality of life.
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Lung Cancer Awareness Month
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Global Lung Cancer Coalition
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Tools for Advocate Involvement

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Journals

Learn about novel research and clinical care advances.
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Featured Meeting

Learn about novel research and clinical care advances.
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Share Your Story of Your Patient Research Advocate Journey

Learn about novel research and clinical care advances.
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IASLC Language Guide

The Language Guide was developed to provide guidelines on best practices with common phrases used during presentations at IASLC conferences and within submitted abstracts.

Interested in Learning More with the IASLC for Advocacy Efforts/Program?

Interested in Learning More about the IASLC's Advocacy Programs? Contact us at advocacy@iaslc.org to meet our advocacy-focused staff, share your story, and learn more about advocacy opportunities